Today was another big test day! Emalee had to starve all morning so she could have a swallow test performed. She was seated in big chair inside an x-ray like machine and then given a bottle. We were able to see the inside of her mouth, trachea, esophagus, throat, ect on a screen and watch her suck and swallow her bottle of dye. It was fascinating! On and off for the last month she starts choking and has a horrible coughing episode during her feeding. She is only able to eat between 1 and 3 oz before aspirating (formula in lungs, resulting in cough attacks). During the test, we all watched the screen with baited breath to see her aspirate. So she started eating, and then ate, and then ate, and then ate some more. The little girl ate more then she has even eaten and did NOT aspirate!! We were in SHOCK. We got back to our room and she started kicking around (in a good way), cooing, smiling, and was happier then she has been in a long time. It was wonderful yet disappointing. The test did not show why she is aspirating because she didn't aspirate! I am hoping that maybe we have had our own little miracle and the aspiration wont come back. Kevin is feeding her right this minute so here is hoping (and praying) that she has another successful feeding. She is going to be evaluated again tomorrow morning. Her RSV and pneumonia is not getting worse....but not really any better yet. We tried to turn down her oxygen but after 15mins her stats were to low so back up it went. She has been started on a reflux medicine. The Drs are thinking that perhaps her reflux could be going high enough in her esophagus that she is aspirating that. Time and tests will tell, hopefully!
The boys got to hang out with their daddy all day! I called to talk to Izak and he told Kevin, "I wont talk to mom on the phone. I will only talk to her if she comes home." Needless to say, my heart was broken!
I know that God hears our prayers. He can and will give us everything we need according to His will.
"He who did not spare his own Son, but gave him up for us all--how will he not also, along with him, graciously give us all things? Romans 8:32
Afternoons with Ethan
3 months ago